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From: 'Chicago Aneinu' via chicago-aneinu <chicago-aneinu@googlegroups.com>
Date: 9/14/21 7:59 PM (GMT-06:00)
To: Chicago Aneinu <myysbyy@aol.com>
Subject: [chicago-aneinu] Name Correction - Little Boy Needs Help
The correct name is Eytan Raphael Shraga Ben Dina Sarah
A request from Sharon First at KEY:
https://jewishlink.news/community-news/bergen/44589-please-help-rafi-meles
Please Help Rafi Meles , 5-year-old son of Dina and Dovi Meles, was recently diagnosed with a rare genetic disease.
Rafi's immune system does not work right. After months of tests, Rafi was recently diagnosed at CHOP with a very rare andlife-threatening genetic disorder called X-linked lymphoproliferative syndrome (XLP). The prognosis for this genetic disease, without treatment, is very poor, with individuals generally not surviving past childhood. HIS HEBREW NAME IS RAPHAEL SHRAGA BEN DINA SARAH.
However, there is hope for Rafi!! We have been informed that the only potential treatment available to him is a bone marrow transplant which will give him a new immune system and give him a second chance at life. As this is a genetic disorder that shows up only in boys our other two sons, Joey and Akiva were tested for this desease shortly after Rafis diagnosis. Thank G-d, not only did both boys test negative for this genetic mutation, but Akiva was an exact match for Rafi! We see the hand of G-d involved in all of this. Rafi was diagnosed early, both of his brother were not affected and one bother was a direct match. Akiva will donate his marrow to save his brothers life.
Rafi's treatments will be incredibly costly, even with insurance. please go to the chesed fund and donate for them https://thechesedfund.com/melesfamily.. Also you can go on facebook page to "Rafi's Road to Recovery" to hear the latest updates on him and any updates for davening and learning in his honor.
Thank you so so much.
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