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From: 'Chicago Aneinu' via chicago-aneinu <chicago-aneinu@googlegroups.com>
Date: 9/19/21 10:55 AM (GMT-06:00)
To: Chicago Aneinu <myysbyy@aol.com>
Subject: [chicago-aneinu] Please Daven - Bone Marrow Trtansplant on Sukkos
Rafi Meles , age 5, was diagnosed with a life threatening genetic disorder. His baby brother is BH a match for him for a bone marrow transplant and donor.
Over Sukkos Rafi is scheduled to have this done. Please have in your tefillot both Rafi , hebrew name Eytan Raphael Shraga Ben Dina Sarah (the recipient) and his younger brother, 1 year old Akiva Moshe Ben Sarah (the doner). for a refuah sheleima.
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The correct name is Eytan Raphael Shraga Ben Dina Sarah
A request from Sharon First at KEY:
Please Help Rafi Meles , 5-year-old son of Dina and Dovi Meles, was recently diagnosed with a rare genetic disease.
Rafi's immune system does not work right. After months of tests, Rafi was recently diagnosed at CHOP with a very rare andlife-threatening genetic disorder called X-linked lymphoproliferative syndrome (XLP). The prognosis for this genetic disease, without treatment, is very poor, with individuals generally not surviving past childhood. HIS HEBREW NAME IS RAPHAEL SHRAGA BEN DINA SARAH.
However, there is hope for Rafi!! We have been informed that the only potential treatment available to him is a bone marrow transplant which will give him a new immune system and give him a second chance at life. As this is a genetic disorder that shows up only in boys our other two sons, Joey and Akiva were tested for this desease shortly after Rafis diagnosis. Thank G-d, not only did both boys test negative for this genetic mutation, but Akiva was an exact match for Rafi! We see the hand of G-d involved in all of this. Rafi was diagnosed early, both of his brother were not affected and one bother was a direct match. Akiva will donate his marrow to save his brothers life.
Rafi's treatments will be incredibly costly, even with insurance. please go to the chesed fund and donate for them https://thechesedfund.com/melesfamily.. Also you can go on facebook page to "Rafi's Road to Recovery" to hear the latest updates on him and any updates for davening and learning in his honor.
Thank you so so much.
Psalms/תהילים
פרק 6/ו
(א) לַמְנַצֵּחַ בִּנְגִינוֹת עַל הַשְּׁמִינִית מִזְמוֹר לְדָוִד:
(ב) ה' אַל בְּאַפְּךָ תוֹכִיחֵנִי וְאַל בַּחֲמָתְךָ תְיַסְּרֵנִי:
(ג) חָנֵּנִי ה' כִּי אֻמְלַל אָנִי רְפָאֵנִי ה' כִּי נִבְהֲלוּ עֲצָמָי:
(ד) וְנַפְשִׁי נִבְהֲלָה מְאֹד וְאַתָּה ה' עַד מָתָי:
(ה) שׁוּבָה ה' חַלְּצָה נַפְשִׁי הוֹשִׁיעֵנִי לְמַעַן חַסְדֶּךָ:
(ו) כִּי אֵין בַּמָּוֶת זִכְרֶךָ בִּשְׁאוֹל מִי יוֹדֶה לָּךְ:
(ז) יָגַעְתִּי בְּאַנְחָתִי אַשְׂחֶה בְכָל לַיְלָה מִטָּתִי בְּדִמְעָתִי עַרְשִׂי אַמְסֶה:
(ח) עָשְׁשָׁה מִכַּעַס עֵינִי עָתְקָה בְּכָל צוֹרְרָי:
(ט) סוּרוּ מִמֶּנִּי כָּל פֹּעֲלֵי אָוֶן כִּי שָׁמַע ה' קוֹל בִּכְיִי:
(י) שָׁמַע ה' תְּחִנָּתִי ה' תְּפִלָּתִי יִקָּח:
(יא) יֵבֹשׁוּ וְיִבָּהֲלוּ מְאֹד כָּל אֹיְבָי יָשֻׁבוּ יֵבֹשׁוּ רָגַע:
1) For the musician, with musical accompaniment on the sheminis instrument, a mizmor by David. (2) Hashem, don't rebuke me in Your anger. Don't chastise me in Your rage. (3) Grant me Your mercy, Hashem, for I have been cut down. (4) Heal me, Hashem, for my bones shake with terror. My soul is utterly terrified, and You Hashem — How long? (5) Turn back, Hashem, release my soul. Save me as befits Your kindness ... (6) for there is no mention of You in death. In the grave who will thank You? (7) I am exhausted from groaning; every night my bed is drenched; with my tears I soil the place where I have lain. (8) My eye is dimmed from anger, aged by all my tormentors. (9) Depart from me all wrongdoers, for Hashem has heard the sound of my weeping. (10) Hashem has heard my plea; Hashem will accept my prayer. (11) They will be ashamed and will be utterly astounded. When all my enemies return, they will be ashamed for a while.
פרק 20/כ
(א) לַמְנַצֵּחַ מִזְמוֹר לְדָוִד:
(ב) יַעַנְךָ ה' בְּיוֹם צָרָה יְשַׂגֶּבְךָ שֵׁם אֱלֹקֵי יַעֲקֹב:
(ג) יִשְׁלַח עֶזְרְךָ מִקֹּדֶשׁ וּמִצִּיּוֹן יִסְעָדֶךָּ:
(ד) יִזְכֹּר כָּל מִנְחֹתֶךָ וְעוֹלָתְךָ יְדַשְּׁנֶה סֶלָה:
(ה) יִתֶּן לְךָ כִלְבָבֶךָ וְכָל עֲצָתְךָ יְמַלֵּא:
(ו) נְרַנְּנָה בִּישׁוּעָתֶךָ וּבְשֵׁם אֱלֹקֵינוּ נִדְגֹּל, יְמַלֵּא ה' כָּל מִשְׁאֲלוֹתֶיךָ:
(ז) עַתָּה יָדַעְתִּי כִּי הוֹשִׁיעַ ה' מְשִׁיחוֹ יַעֲנֵהוּ מִשְּׁמֵי קָדְשׁוֹ בִּגְבֻרוֹת יֵשַׁע יְמִינוֹ:
(ח) אֵלֶּה בָרֶכֶב וְאֵלֶּה בַסּוּסִים וַאֲנַחְנוּ בְּשֵׁם ה' אֱלֹהֵינוּ נַזְכִּיר:
(ט) הֵמָּה כָּרְעוּ וְנָפָלוּ וַאֲנַחְנוּ קַּמְנוּ וַנִּתְעוֹדָד:
(י) ה' הוֹשִׁיעָה הַמֶּלֶךְ יַעֲנֵנוּ בְיוֹם קָרְאֵנוּ:
(1) For the musician, a mizmor by David. (2) May Hashem answer you on the day of distress. May the Name of Yaakov's G-d protect you. (3) May He send your help from the Mikdash; may He support you from Tzion. (4) May He give consideration to all your minchah-offerings. May He accept your olah-offerings, Selah. (5) May He grant you according to your heart. May He fulfill your every plan. (6) We will sing joyously because of your deliverance, and we will gather around banners in the Name of our G-d. May Hashem fulfill all your requests. (7) Now I know that Hashem continues to save His anointed one. He will continue to answer from His holy heaven, with the mighty victories of His right hand. (8) Some [depend] on chariots, and some on horses. We call out the Name of Hashem, our G-d. (9) They slumped and fell, but we stood up and were empowered. (10) Hashem save! May the King answer us on the day we call.
Psalms Chapter 130 תְּהִלִּים
| א שִׁיר הַמַּעֲלוֹת: מִמַּעֲמַקִּים קְרָאתִיךָ יְהוָה. | 1 A Song of Ascents. Out of the depths have I called Thee, O LORD. |
| ב אֲדֹנָי, שִׁמְעָה בְקוֹלִי: תִּהְיֶינָה אָזְנֶיךָ, קַשֻּׁבוֹת-- לְקוֹל, תַּחֲנוּנָי. | 2 Lord, hearken unto my voice; let Thine ears be attentive to the voice of my supplications. |
| ג אִם-עֲוֺנוֹת תִּשְׁמָר-יָהּ-- אֲדֹנָי, מִי יַעֲמֹד. | 3 If Thou, LORD, should mark iniquities, O Lord, who could stand? |
| ד כִּי-עִמְּךָ הַסְּלִיחָה-- לְמַעַן, תִּוָּרֵא. | 4 For with Thee there is forgiveness, that Thou may be feared. |
| ה קִוִּיתִי יְהוָה, קִוְּתָה נַפְשִׁי; וְלִדְבָרוֹ הוֹחָלְתִּי. | 5 I wait for the LORD, my soul does wait, and in His word do I hope. |
| ו נַפְשִׁי לַאדֹנָי-- מִשֹּׁמְרִים לַבֹּקֶר, שֹׁמְרִים לַבֹּקֶר. | 6 My soul waits for the Lord, more than watchmen for the morning; yea, more than watchmen for the morning. |
| ז יַחֵל יִשְׂרָאֵל, אֶל-יְהוָה: כִּי-עִם-יְהוָה הַחֶסֶד; וְהַרְבֵּה עִמּוֹ פְדוּת. | 7 O Israel, hope in the LORD; for with the LORD there is mercy, and with Him is plenteous redemption. |
| ח וְהוּא, יִפְדֶּה אֶת-יִשְׂרָאֵל-- מִכֹּל, עֲוֺנֹתָיו. | 8 And He will redeem Israel from all his iniquities. |
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